June 20, 2018

Heat intolerance is one of the few POTS symptoms I’ve had for as long as I can remember. I went to a Catholic private school for all of elementary and high school which involved wearing a uniform. In high school I remember being so uncomfortable with my white polo shirt and kilt in the winter because I thought it was too hot. My friends complained of our school being too cold and opted to wear the black uniform jacket and tights instead of the knee-high socks I wore instead. By the end of every single school day, I had a headache and was sweating. My mom would pick up my brothers and I and I would sit in...

June 7, 2018

When I first got sick, my daily symptoms were a living hell. Throw in doctors who think you’re crazy because they can’t find anything wrong with you and you soon realize that rock bottom has a basement. Surviving the initial shock and trauma of developing POTS takes everything out of you. You’re at your weakest moment but have to muster up the strength to fight to be heard, fight to be believed, and fight to get treatment. It's infuriating, it's frustrating, and it's just not fair.

It’s pretty bad that experiencing trauma at the hands of doctors who vow to “do no harm” has become some sort o...

May 3, 2018

*Disclaimer: just because I eat like this, doesn't mean I'm saying you should. Often when I explain why I eat a certain way, people get defensive. My goal, however, is to explain why I eat a certain way, not why you should, as I'm often asked about this. Also, I'm a firm believer that diet is important, but usually not sufficient in and of itself for treating chronic illness. No diet or lifestyle management technique has cured me yet, but my symptoms would flare more without these lifestyle choices.*

I live alone in a city nicknamed 'Raincity." I love where I live, and I love my living situation, but these...

April 26, 2018

Last week I presented evidence on how exercise is an essential part of the treatment of POTS but that exercise definitely isn't a cure for POTS. You can read part 1 of this 2-part "Exercise and POTS" series here. Today I'm going to share with you what kinds of exercise I personally do to this very day. 

I personally do a self-modified version of Dr. Levine's exercise protocol which includes "cardio" (recumbent bike) exercises on one day and strength exercises the next. Dr. Levine's POTS exercise protocol involves working out every week day (one day cardio the next day strength and so on) with weekends free...

April 19, 2018

Current research has shown that POTS is not caused by deconditioning (decreased muscle and cardiac strength caused by inactivity).

-Pulmonary Circulation, 2016

I want to start with a few disclaimers:

-When I first developed POTS there is NO WAY I could've exercised. Once I was put on a few stabilizing medications, I now realize that I should've done whatever I could to maintain some strength. Instead, I didn't move for an entire month during a hospital stay and my muscles atrophied. To this day, I have severe pain due to the muscle atrophy I experienced from the waist down on the right side of my body. Durin...

March 8, 2018

I am not sponsored by any of these companies. I purchased all of these products with my own money and these are my honest reviews.

Before I got sick I became a tree-hugger (I still am) who wanted to depend on as little products as possible. When I realized that I could buy a big jar of coconut oil and castile soap and replace about 20 of the products in my house with them, I was sold. I realized that mentally depending on 20 unnecessary makeup products, excessive toiletry products, and a hundred other things for comfort resulted in overweight bags at the airport and an overwhelmed soul. I didn't even want...

March 1, 2018

In honour of Dysautonomia Awareneness Month (October every year), I created a post series this past October 2017 on my Instagram account. I decided to share the picture series I made as a blog post so others could share all the pictures at once to spread awareness about the complexities and debilitating nature of Dysautonomia conditions.

 

February 22, 2018

**TW: medical PTSD, medical malpractice**

Hey there! If you haven't heard, January 20th 2018 was my four year anniversary of developing POTS. In honour of that, I've decided to finally share my entire story in hopes that it might help even one person. It's been a lengthy, traumatic, and grace-covered story so I divided it into parts: part 1, part 2 and today part 3.

Today I'll specifically be starting with a chapter of my story that I think many people with POTS will relate to: a lengthy hospitalization, medical trauma, medication side effects, doctors who don't understand, and the relief of finally being d...

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